Our Commitment to Privacy

This platform, defined to include any access via a web browser and any related application (collectively "Platform"), is provided, owned and managed by IQVIA?. IQVIA is committed to protecting your privacy. This Platform is provided by IQVIA for the purposes of supporting your potential or actual participation in one or more clinical trials or other health-related research (?clinical trials?) and the accompanying use and disclosure of your personal information, either as a patient, caregiver or as a member of the study team (PI, Decentralized Clinical Trial Coordinator, etc.). This Privacy Policy ("Policy") covers your full engagement with IQVIA current and future clinical trials and other health care- related research, from your initial interaction with the Platform to the beginning of your contact with a potential trial, through participation in any trial and potential participation in other trials and additional uses of your personal information as identified in this policy to support medical research.

This Policy describes how we use, disclose and protect any personal information that we collect or receive from you or on your behalf through this Platform, whether as a potential clinical trial or healthcare research participant, patient, data subject or healthcare professional. If you are participating in a specific clinical trial as a trial participant, this Policy supplements the information you have received or will receive as part of the clinical trial?s informed consent process. The informed consent form (?ICF?) and research protocol will define how information about you will be used in connection with the clinical trial. This Policy is intended to meet applicable legal requirements globally, including in North America, Europe, Asia Pacific, and other relevant jurisdictions and supplements the IQVIA Privacy Policy and Online Privacy Policy, which can be found at www.IQVIA.com.

The Information We Collect

When you engage with this Platform, we will collect certain personal information from and about you in connection with your interest in clinical trial and other medical research activities. The personally identifiable information we may collect from you ? meaning any information relating to an identified or identifiable natural person - can include your first name, last name, title and/or email address, contact telephone number(s) or other contact information, birthdate or birth year and zip or postal code that you provide to us through your use of the Platform including in any of the ways explained below. It may also include additional demographic or personal health information about you that you provide to the Platform to support your interest in clinical trial or other medical research activities. It may also include certain financial information, in connection with any expense reimbursement or other compensation related to a clinical trial or other medical research. If you are a health care professional, we may also collect financial information, and academic education and professional information (including, but not limited to, business address and business name). This information is collected through direct user input as described below (?Personally Identifiable Information?). We also may obtain information about you from other sources as described in this Policy in connection with health care research activities. We may also receive information about how you use our website through the automatic operation of ?cookies? and web logs and other technologies.

This Policy applies to all information received through the Platform, whether automatically, through direct user input or otherwise. For example, we receive information in any of the following ways:

Information when you register for our platform

Registration is required for use of this Platform. To enable use of the system, including generating your log-in to the Platform, we may collect certain Personally Identifiable Information about you, and you may need to create a log-in and password in order to access the Platform. When you register at our platform, if you wish to learn more about current or future clinical trials, we will ask you to provide information about you that will help us identify current or future clinical trials that may be of relevance to you. This may include demographic information and (in some circumstances) certain kinds of personal health information. We will collect information from you to assist with the identification of current and/or future trials. In some circumstances we may also collect information about you from other sources to supplement this information and help us identify potential research opportunities for you.

Information as part of the clinical trial itself:

Where applicable, when you participate in a particular clinical trial (or evaluate whether to participate in a clinical trial), you will be provided with information about the trial itself and how information about you will be used in connection with the trial. The ICF for the clinical trial will govern how your Personally Identifiable Information is used in connection with a specific clinical trial. This Policy only applies to information that is obtained through this Platform in addition to the information that is collected and used for the clinical trial (for example, your registration information for this Platform before you decide to participate in a clinical trial). The ICF will be incorporated, but not merged, into this Policy. Each ICF will include, as appropriate, the scope of the study, timeline and privacy information that you agree to allow the Site personnel, IQVIA, and others involved in the study process, to collect and share and to whom that information can be shared. To the extent any terms or provisions of an ICF conflict with the terms and provisions of this Policy, the terms and conditions of the ICF shall control. If you are participating in a virtual trial, this Platform may be the primary means of collecting information relating to your participation in the virtual trial. In this event, we also will provide you with individual clinical trial results as set forth in the ICF.

Web Logs

We use standard web logs that record basic data about people who visit our websites.

The following information is contained in these logs: We do not normally seek to identify individuals from web logs including from their IP address and we do not disclose them to others. However, web logs may be used to identify an individual who we have reason to suspect tried to damage our website or use it in an unauthorized way. If we have reason to believe that there has been a violation of computer security or related laws, we may share our web logs with law enforcement agencies.

Cookies and other technologies

A cookie is a piece of data or a file that a website can send to your internet browser which may then store it on your computer. Cookies store information such as the pages you visited, the website features you used, and the amount of time you visited a particular webpage. They are also a means of keeping track of a user's preferences during a visit to a website. In order to provide persistence of a user?s preference, we store a unique identifier in a ?temporary? or ?session? cookie that only exists during the browser?s session with the website. When the user returns to the website, the identifier can be extracted from the session cookie and used to request detailed search information for that user from our database.

In addition, visitors clicking through to this Website from third-party services such as Facebook, Twitter, Instagram, Google, Bing or Yahoo! search engine sponsored ads will have a cookie placed on their computer for 30 days. This cookie allows Facebook, Twitter, Instagram, Google, Bing and Yahoo!, along with IQVIA, to measure the effectiveness of their search engine advertising.

Our uses of other technologies ("Technologies") to automatically collect information through the website fall into the following general categories: The following cookies may be used on our website:

Most browsers also allow you to block, disable and delete cookies. However, if you do that, the website may not work properly. You always have the right to refuse the storage of cookies on your computer, or to disable and/or delete cookies at any time as your browser or device permits. It is important that you understand that if you block, disable or otherwise reject our cookies, you may not be able to use the website or all its interactive features or to use certain of its essential features. This may impact your ability to participate in a virtual clinical trial. We suggest that you accept cookies because they allow you to get the most out of your website experience (including your participation in a virtual clinical trial), and to take advantage of some of the website?s essential features.

For more information about the cookies we use, and to see what cookies have been set on your computer and how to manage, disable and delete them, visit www.allaboutcookies.org. We have also provided information about how you may opt-out of your use of certain analytics and advertising/targeting cookies below.

Device Information:

We may also collect certain information that your mobile device sends when you use our services or access our Platform, like a device identifier, user settings and the operating system of your device. Information collected about your mobile device and internet connection may include the device's unique device identifier, IMEI number, IP address, operating system, browser type, browser language, referring/exit pages and URLs, mobile network information and the device's telephone number. Tools, applications, and widgets that we enable you to download to enable you to use the services on any mobile devices, may store information on your mobile or other devices. These tools may transmit personal information to us to enable you to access your user account and to enable us to track use of these tools. Some of these tools may enable you to email reports and other information from the tool. We may use personal or non-identifiable information transmitted to us to enhance these tools, to develop new tools, for quality improvement and as otherwise described in this Policy or in other notices we provide. We may send you e-mail messages with a "click-through URL" linked to the content of our Platform. When you click onto one of these URLs, you will pass through our server before arriving at the destination webpage. We may track this click-through data to help us determine your interest in the subject matter and measure the effectiveness of our user communications. You can avoid being tracked simply by not clicking on any links or images in e-mail we send you.

The Way We Use Your Information

We acquire, hold, use, and process your Personally Identifiable Information in order to provide, maintain and administer your login account, to provide you with information on clinical trials, other health care research or other IQVIA brand services, to contact you in the future with regard to any of these services (including about other clinical trials or other IQVIA products or services), to support your participation in the clinical trial consistent with your informed consent, to match you, based on your Personally Identifiable Information, to current or future clinical trials, other research opportunities, or other IQVIA services, and based on legal grounds, your explicit consent and for the legitimate business purposes outlined in this Policy.

In addition, from time to time, server logs may be reviewed for security purposes ? e.g., to detect unauthorized activity on the services. In such cases, server log data containing IP addresses may be shared with law enforcement bodies in order that they may identify users in connection with their investigation of the unauthorized activities.

Use for Our Administrative Purposes

We also may use your information for our administrative purposes, such as to measure interest in and/or develop our Platform services, ensure internal quality control, comply with regulatory requirements, including prevent potentially prohibited or illegal activities, and enforce our Terms of Use.

IQVIA may use Personally Identifiable Information for other purposes for which we have a legitimate interest, such as contacting you for any future clinical services, individual or market research, anti-fraud protection, or any other purpose disclosed to you at the time you provide Personally Identifiable Information or with your consent.

Aggregate Data Use and De-Identified or Anonymized Information

We combine and use non-personal information (aggregated data) from our web logs and other Technologies to study how the Platform is being used. We will periodically analyze this aggregated data and use what we learn to make improvements to our Platform. In addition, we may share this aggregated data (which does not contain any information which can identify an individual) with our clinical research partners to assist them in better designing their Platforms or clinical trials.

IQVIA may use Personally Identifiable Information and other information about you to create anonymized and/or aggregated information, such as de-identified demographic information, de-identified location information, information about the computer or device from which you access IQVIA's Services, this Website, or other analyses we create related to our products and services or clinical research activities. Anonymized and/or aggregated information is used for a variety of functions, including the measurement of visitors? interest in and use of various portions or features of the Services. Anonymized and aggregated information is not Personally Identifiable Information, and we may use such information in a number of ways, including research, internal analysis, analytics, and any other legally permissible purposes. We may share this information within IQVIA and with third parties for our or their purposes in an anonymized or aggregated form that is designed to prevent anyone from identifying you. We may use and disclose this anonymized, de-identified and/or aggregated information in any way permitted by applicable law.


How We May Disclose Your Information

Sharing Information with Clinical Trial Support Personnel and Other Clinical Trial Health Care Providers

If you request or otherwise provide appropriate permission, we will forward your Personally Identifiable Information (such as your name, year of birth, telephone number and/or email address and zip or postal code), and your personal health information and other information to the individuals and/or entities involved in conducting the clinical trial in which you are interested in participating. This may include a study concierge, patient guide, clinical trial support personnel or other study staff or third parties involved in conducting the clinical trial in which you are interested or are participating. We also will share information about your participation, or potential participation, in a clinical trial or other research activity, with the providers, researchers and others conducting the trial, consistent with applicable law and any applicable informed consent (if any).

Vendors and Service Providers

We may share any information we receive with vendors and service providers in order to support your participation, or potential participation, in a clinical trial or other IQVIA activity and permit us to provide our services in connection with clinical trials or other activity. The types of service providers (processors) to whom we entrust personal information include, but are not limited to, service providers for: (i) provision of IT and related services; (ii) provision of information and services you have requested, including recruitment; (iii) payment processing; and (iv) customer service activities; and (v) in connection with the provision of the Platform. IQVIA has executed appropriate contracts with the service providers that prohibit them from using or sharing Personal Identifiable Information except as necessary to perform the contracted services on our behalf or to comply with applicable legal requirements.

Analytics Providers

We partner with certain third parties to obtain the automatically collected information discussed above and to engage in analysis, auditing, research, and reporting. These third parties may use web logs or web beacons, and they may set and access cookies on your computer or other device. In particular, we use Google Analytics to help collect and analyze certain information for the purposes discussed above. You may opt out of the use of cookies by Google Analytics here.

Targeted Advertising

We also enable third-party tracking mechanisms to collect information about you and your computing devices for use in online interest-based advertising. For example, third parties may use the fact that you visited our website to target online ads to you. In addition, our third-party advertising networks might use information about your use of our website to help target advertisements based on your online activity in general. For information about interest-based advertising practices, including privacy and confidentiality, visit the Network Advertising Initiative website or the Digital Advertising Alliance website.

The use of online tracking mechanisms by third parties is subject to those third parties? own privacy policies, and not this Policy. If you prefer to prevent third parties from setting and accessing cookies on your computer or other device, you may set your browser to block cookies. Additionally, you may remove yourself from the targeted advertising of companies within the Network Advertising Initiative by opting out here.

Sharing Information with Other Third Parties

It is possible that we may need to disclose Personally Identifiable Information about you in response to a law enforcement or national security request or legal process such as a search warrant, subpoena, or court order or in connection with an investigation or prosecution of suspected or actual illegal activity. Disclosures may also be made to comply with the law, protect our legal rights, or yours, or those of others? including also property, or safety, to protect the security or integrity of our Platform, to take precautions against liability, or during emergencies if physical safety is believed to be at risk., or if we, in good faith, believe that disclosure is otherwise necessary or advisable. These types of disclosures are unlikely, but they are possible and so we describe them here.

We also may need to share information with regulators or others in government who oversee clinical trial activities, as described in the ICF.

We may also share your information with personnel involved in conducting research studies and/or our affiliates.

We may also share your information in the event of a corporate merger, acquisition or other corporate transaction related to IQVIA.

Your Privacy Choices

Depending on your jurisdiction, you may also have certain legal rights in relation to the processing of your Personally Identifiable Information. These rights may include:
  1. The right to access your information (including a data portability request);
  2. The right to correct or amend any information we have on file about you;
  3. The right to delete your information;
  4. The right to limit the use of your "sensitive" information;
  5. The right to opt-out of the sale or "sharing" of your information;
  6. The right to opt-out of the use of your information for targeted advertising purposes;
  7. The right to restrict or object to the processing of your information (such as for direct marketing purposes);
  8. The right to restrict the use of your information for certain automated decision-making (including profiling); and
  9. The right to revoke your consent (to the extent applicable).

To exercise any of these rights, please fill out this webform or contact us by email at privacyofficer@iqvia.com with your name, physical address, email address, the email address associated with your interactions with IQVIA (if different), telephone number, and details about your interactions with IQVIA (including whether you are a patient or a health care professional). You may also designate an authorized agent to submit a request on your behalf. To designate an agent, please also send us a written and signed document by both you and the agent that authorizes the agent to act on your behalf. You may also use a power of attorney. Please note that we will still require you to provide sufficient information to allow us to reasonably verify that you are the person about whom we are receiving a request. We will respond to any request you submit in the time period required by applicable law.

Although IQVIA makes good faith efforts to provide individuals with access to their Personal Information, there may be circumstances in which IQVIA is unable to provide access, including but not limited to: where the information contains legal privilege, would compromise othersí privacy or other legitimate rights, where the burden or expense of providing access would be disproportionate to the risks to the individualís privacy in the case in question or where it is commercially proprietary. If IQVIA determines that access should be restricted in any particular instance, we will provide you with an explanation of why that determination has been made and a contact point for any further inquiries. These terms also may not apply when IQVIA is merely processing the personal information on behalf of another party that determines the means and purpose of the processing. In those situations, data subject rights may need to be addressed by another entity, such as the clinical trial sponsor.

Depending on your jurisdiction, you may also have the right to lodge a complaint with your supervisory authority or challenge our decision with regard to any of your data protection rights.

If you are a California resident, you may have additional rights in connection with certain data collected through this Platform. These rights will not apply to any personal information obtained during a clinical trial or information that has been de-identified, anonymized or aggregated. If you wish to learn more about your rights as a California resident, please visit https://www.iqvia.com/about-us/privacy/ccpa.

PLEASE NOTE:

Although we make good faith efforts to provide users with access to their Personally Identifiable Information, there may be circumstances in which we are unable to provide access or delete certain information, including but not limited to where the information: contains legally privileged information, must be maintained according to law, would compromise the integrity of the clinical study or the study data, would compromise othersí privacy or other legitimate rights, where the burden or expense of providing access would be disproportionate to the risks to the individualís privacy in the case in question, where it is commercially proprietary or where the information must be maintained in connection with the clinical trial. If we determine that access should be restricted in any particular instance, we will provide you with an explanation of why that determination has been made and a contact point for any further inquiries. To protect your privacy, we will take commercially reasonable steps to verify your identity before granting access to or making any changes to your personal information.
All requests received from you under this Policy will be processed in line with applicable local laws.

Do Not Track

Do Not Track ("DNT") is a privacy preference that users can set in certain web browsers. DNT is a way for users to inform websites and services that they do not want certain information about their webpage visits collected over time and across websites or online services. Please note that we do not respond to or honor DNT signals or similar mechanisms transmitted by web browsers.

International Transfers

While some aspects of this platform may be hosted in the European Union or other countries, much of this Platform and its services are provided from the United States of America. Accordingly, any personal information we receive through direct user input may be stored on our servers located in the United States of America. By choosing to visit the Platform, utilize the services, or otherwise provide information to us, you agree and consent to this storage in the US-located servers and that personal information you provide may also be transferred to and processed by persons operating outside the US and/or the European Economic Area who work for us and/or service vendors who are engaged to help provide the services. You should be aware that not all countries offer the same standards of data protection and personal information privacy as those that may apply where you reside. However, your personal information will always be treated and used by us in accordance with this Policy. In addition, IQVIA participates in the EU-U.S. and Swiss-U.S. Privacy Shield Frameworks that have been implemented by the Department of Commerce. These principles (which can be reviewed in IQVIAís Privacy Shield Policy at https://www.iqvia.com/about-us/privacy/privacy-shield-policy) help to demonstrate our commitment to the protection of personal information received from or about individuals protected by these Principles and the EU General Data Protection Regulation.
(Please note that as of July 16, 2020, we no longer rely on the EU-U.S. or the Swiss-U.S. Privacy Shield to transfer data that originated in the EEA, Switzerland, or the UK to the U.S.).

Information Security

To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect. Unfortunately, we cannot ensure or warrant the security of any information you provide to us. We do not accept liability for unintentional disclosure.

Children's Privacy

Protecting the privacy of the very young is especially important. This Platform is not intended for or designed to attract minors. Users under the age of 18 or the age of legal majority in their country should not submit information to our Platform, and we do not collect, receive or knowingly keep information from any user we know or have reason to believe is a child under the age of 18 or age of legal majority, unless the information is provided by a parent or guardian. If a child has provided us with Personally Identifiable Information, the parent or guardian of that child should contact us if they want this information deleted from our files.

Users that are participating in pediatric trials will be asked to enter a date of birth. If the date of birth is under the age of 18 or legal majority in their country, the user will not be allowed to continue and submit the information unless that information is submitted by a parent or guardian.

Data Retention

The information you provide to us may be archived or stored periodically by us according to backup processes and will only be retained for as long as is required for the purposes for which it was collected, to provide our products and services to you, to support your participation in clinical trial activity, resolve disputes, establish legal defenses, conduct audits, pursue legitimate business purposes, enforce our agreements, and comply with applicable laws.

Accountability/Compliance and How to Contact Us

We are committed to protecting the privacy of our Platform users. We have posted this Policy to communicate the specifics of this commitment.

If you wish to access, correct, update or request removal of any of your information you provided to us or if you have any questions regarding this Policy or would like more information on our privacy practices, please contact us at: privacyofficer@iqvia.com. We will address your concerns and attempt to resolve any privacy issues in a timely manner.

In addition, we will address any complaints or questions that our users may have regarding this policy or its implementation. If you have a complaint or question about this Policy, please email to privacyofficer@iqvia.com. We will respond to your comments or concerns as soon as possible following receipt of your inquiry.

If you are a resident of the European Union or Switzerland and feel that any request or complaint remains unresolved, you may contact your national data protection authority for your EU Member State which can be located through the following European Commission website: https://ec.europa.eu/info/law/law-topic/data-protection/reform/what-are-data-protection-authorities-dpas_en.

As this Policy explains, we are responsible for determining the purposes and means for the handling and processing of personal information subject to this Policy. In most cases IQVIA is the "controller" of your personal information collected through this Platform for purposes of compliance with the Data Protection Law of the European Union. If IQVIA is acting on behalf of a clinical trial sponsor, then that sponsor may instead be the controller of such Personally Identifiable Information.

For queries by post to IQVIA, please write to:

83 Wooster Heights Road, Danbury, CT 06810, USA

or

4820 Emperor Boulevard, Durham, North Carolina 27703, USA

Links to Other Websites

Our website may contain links to other third-party websites. You should carefully review the privacy policies or notices and practices of other websites, as we cannot control or be responsible for their privacy policies, notices or practices. For links to other company web properties, please review those privacy terms as well as they may differ from those on this website.

Notification of Changes

As we provide more information and services on our Platform and as privacy laws and regulations change, we may need to revise or update our Policy from time to time. We will always change the "Last Updated" date on the Policy to reflect when it was last revised. If we make a meaningful change to the Policy, we will notify you here, by email or by means of a notice on the Platform home page. However, we will always continue to protect your Personally Identifiable Information according to the law and as described by our current Policy.

Additionally, before we use Personally Identifiable Information for any new purpose not originally authorized by you, we will endeavor to provide information regarding the new purpose and give you the opportunity to opt out. Where your consent for the processing of Personally Identifiable Information is otherwise required by law or contract, we will endeavor to comply with the law or contract.

This Policy was last updated January 2023.